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U.R. Our Hope

U.R. Our Hope

U.R. Our Hope assists individuals and their families on the journey to diagnosis and helps them navigate the healthcare system with a rare diagnosis. With over 8,000 known rare diagnoses, it can take up to 7 years to receive an official diagnosis. We help reduce that time by connecting families to resources, specialists, and most importantly a community to guide them on their diagnostic journey. 

What we do

U.R. Our Hope is one of the only organizations in the country assisting patients on the journey to diagnosis and continues to support them beyond. We assist families in finding answers and critical treatment plans. 

  • Gas/Meal Cards - we provide gas/meal gift cards to those traveling for medical visits to see doctors specialized in their conditions or best fit their needs
  • Research Programs - we help to enroll individuals in some of the nation's top research programs to find a diagnosis, such as the NIH Undiagnosed Diseases Program and TGEN
  • Crisis Support - during hospitalization or times of crisis we provide respite, meals, emergency lodging, and support for burial costs
  • Family Meetings - local families gather each month to connect and spend time with others to network, share resources, and simply offer support to others who share the journey

Our Impact 

We have over 75 active families and continue receiving referrals daily. Our families are concentrated in Central Texas, but our reach extends across 10 different states and at least 5 other countries. We have helped these families find a diagnosis or make significant progress in their diagnostic journey.

How You Can Help 

  • Fundraise - Set up a page to help us reach our fundraising goal! With an all volunteer board and little to no overhead cost you can rest assured that your dollars are going directly to helping families. Earn free race entries based on the amount you raise! 
  • Race for Hope - Join Team U.R. Our Hope when you register to race!
  • Volunteer - Join our Volunteer group to support and encourage runners during their race

Create a Campaign

Create your own fundraising campaign to help us reach our goal and you can earn a free entry to the Austin Marathon! 

Raise $250 for a free entry for the 5K race.

Raise $500 for a free entry for the Half marathon.

Raise $1,000 for a free entry for the full marathon.